Toddlers and children
Knowing when and how to discuss Cystic Fibrosis with your child can be challenging, here are some useful resources.
Explaining CF to children
Any parent will tell you that once your children start to talk they’ll start to ask “why?”
Throwing in a chronic disease like cystic fibrosis (CF) that requires lots of medication and treatment means there are lots of explanations to be given.
Below are a few ways of helping your child understand their condition, and why it is so important for them to take their medication and go through all the other treatment.
Book
“Monty: A story about Cystic Fibrosis” by Meredith Bubb and Kate White McGovern
It’s available through the Cystic Fibrosis Queensland website. Monty takes you through a day in the life of someone with cystic fibrosis.
Videos
“Getting Nosey about CF with Oli and Nush”
A cartoon aimed at children with cystic fibrosis aged four to eight created by the CF Trust in the UK. It helps answer some of the questions they may have about CF. It can also be used as an educational resource in schools and hospitals.
“What is CF?” Animation
This is an animated video featuring two children explaining CF to their dog. It was created for the San Diego Chapter of the Cystic Fibrosis Foundation’s CureFinders in-school program.