Abstract from original article from The North Shore Times, via http://www.pressreader.com/
Knox Grammar student turned Wallabies player Nathan Charles paid a very special visit to his former hometown last week.
The Western Force hooker, who is currently confined to the sidelines with a shoulder injury, was back in Sydney to celebrate World Cystic Fibrosis Day, of which he is a National Ambassador for Cystic Fibrosis Australia.
Charles, 27, was diagnosed with the incurable disease at three months old and has gone on to become an inspiration to many as the only person in the world with cystic fibrosis to play contact sport at an international level.
“I’ve never allowed it to affect my rugby career,” he said.
“It hasn’t really impacted me at all — I’ve dealt with it outside the rugby realms by keeping myself as healthy as possible.”
While Charles said he wanted to be defined by his abilities on the field and not by his condition, he is determined to use his profile to encourage others with cystic fibrosis to follow their dreams.
“Knowledge is power — be disciplined,” he said,
“You need to understand your body and infections.”
To help people better manage their disease, Charles was on hand to launch a world-first app for cystic fibrosis sufferers called CF Buzz at The Moody Chef cafe in St Leonards on Friday.
“This app is a great initiative,” he said.
‘Young people with cystic fibrosis want to take control of their own condition and we know that self-management of cystic fibrosis is the key to improving a person’s health and wellbeing.”
Charles said the app vould allow users to self-manage their condition by collating vital information that can be aceesse d at the touch of a button.
Cystic Fibrosis NSW chief executive Michele Adair said the regimen for cystic fibrosis was “complex and relentless”.
`CF Buzz matters because it not Dilly puts people in charge of their own health regimen, it records their health status and goals and helps improve their understanding of their condition,” she said.
The CF Buzz can be downloaded via Apple iTunes store for $4.99. To learn more about the CFbuzz app, visit www.cfbuzz.org/app.